Spoonie Life
SPOONIE LIFE
July 28, 2020
Everything has its little spoon
Being able to uproot trees one day and finding the strength to get up the next.
Every day, Spoonies (people with chronic illnesses) are provided with a limited number of spoons, one filled with strength, one with endurance, one with freedom from pain, one with zest for life, courage to live, will to live - for the seriously ill and other small doses of energy that healthy people can draw on every day.
Unfortunately, a spoonie sometimes only has one spoon for a whole week. Yesterday I was in a good mood and did some gardening, but today I am happy that I managed to take a shower. Despite the pain everywhere, I am trying to stubbornly devote myself to my art therapy and just forget everything.
For other spoonies, this would be extremely counterproductive; they would urgently need the day to recover so that they can take one step at a time again tomorrow. It sometimes takes days for a small spoon to fill up again.
I find it so hard to slow down when I'm feeling good. The consequences hit me even harder and it's hard not to fall into a depressive mood.
That's why distraction is so important and there is no such thing as a guilty conscience if you can't move from the couch for two days.
This is our Spoonie life 🥄 The Spoonie Theory comes from Christine Miserandino and you really can't describe it better.
